Hi! I went undiagnosed and under-treated for about three years, undiagnosed with decent treatment for a year and a half, and was unofficially diagnosed and properly treated for a year, and have been officially diagnosed and properly treated since May. 

Five and a half years before I tested positive for Lyme Disease (although I’m in the process of getting diagnosed with CIRS as well now). 

I understand your struggles, I really do. So many doctors and specialists, where our appointments ended with a referral to a different specialist, a suggestion to take anti-depressants or anxiety meds, or a haphazardly slapped on diagnosis that was completely lazy. 

• Research it and see if it feels right, or if they’re missing something. 
• Consider the fact that some illnesses can mimic others symptom wise.
• Also consider the fact that some illnesses are often tied to co-infections or other chronic issues. (For example, I have Late Stage Chronic Lyme Disease. But I also have 7 chronic co-infections and likely have CIRS. These all commonly go together)
• Talk with others who have gotten that diagnosis, whether it was misdiagnosed or not. 
• See another doctor and get it double checked. Find someone who will test for it. 
• Find a doctor who will tell you all of the possible things that could be causing your symptoms and is willing to test as many of those paths as they can. 

I didn’t find any real answers or find anyone to run every possible test until I started seeing a Naturopath. There are some great Western Medicine doctors out there, but I wasn’t able to find any of them. They just didn’t have the answers or didn’t seem to care. If you do go the Naturopathic medicine route, I’d recommend finding a ND who understands the value of holistic medicine and of Western Medicine, when it’s needed. 

I wish you the best of luck on your diagnosis journey!