I think something not often talked about with chronic illness/pain is the sense of dread/doom. Like I’m not talking anxiety, although it is similar. 

It’s when there is something so wrong with your body that your brain goes “this isn’t right” “oh I already know that” “wait this really isn’t right” “shush I know that” over and over again and you’re just left with this sense that something is wrong.

Not to mention how hard it is to figure out what’s a gut feeling/intuition/warning bells or whats a flare or bad moment. If I dig down and my deepest feelings are pain/discomfort, what do I trust? A pain-addled brain? 

impotsiblelife:

Sometimes, when you’re chronically ill, you have to do things that seem “selfish.” You can’t do favors for anyone else because you don’t have the energy. You have to take that last seat on the subway instead of leaving it for someone else. You might have to apply for public assistance because you can’t work anymore. You’ll definitely have to ask the people around you for a lot more help than you used to need. 

That’s all OK. You shouldn’t feel guilty about any of it. You’re not selfish, you’re sick. 

tiredtrauma:

Just because you’re young doesn’t mean you can’t have physical problems.

Just because you’re young doesn’t mean you can’t be disabled.

Just because you’re young doesn’t mean you can’t be chronically ill.

It’s not your fault that some people don’t understand, even if these people are close to you, like family or friends.

ithelpstodream:

Lent Hirsch began to wonder whether other young women were struggling with similarly serious health conditions. The answer turned out to be an overwhelming yes.

Statistics show that young women are disproportionately affected by certain diseases and health conditions, she says — and that’s hard enough.

But they also have to grapple with societal attitudes toward women, and young women in particular, which makes everything that much more difficult.

There’s “this idea that young women are this beacon of health and beauty and fertility,” she says.

When illness strikes, “nobody believes you. Or they say, ‘Oh, my God,’ in this really dramatic way,” she says. “It also means that often you don’t feel comfortable revealing [your condition] to people.”

That contributes to the perception that there aren’t many young women with serious medical conditions, she says, which her research shows couldn’t be further from the truth.

https://www.marketwatch.com/story/one-side-effect-of-being-young-female-and-sick-people-wont-believe-you-2018-03-15