Tag: chronically chill

studying-without-spoons:

I am not an example of chronic illness for abled people to use.

I am not here for you to prove to someone that a chronically ill person can get good grades in school

I am not here for you to prove that a chronically ill person can be productive

I am not here for you to prove that a chronically ill person can be positive and happy

I am not here for you to prove that a chronically ill person can walk without a mobility aid

I am not here for you to prove to another chronically ill person that a chronically ill person can do something that they say they can’t do

I am not an example for you to use. Not when you don’t know how difficult it was for me to do these things.

1spoonatatime:

windowghost:

Let me be angry that I’m chronically ill. Let me feel jealous, and cheated, and all the horrible feelings that come before acceptance. I’m not yet ready to accept that my life will be full of chronic pain and fatigue and migraines and vomiting. Eventually I’ll figure it out, and I’ll learn to live with it. But right now I’m scared and confused and I’m angry.

This is really important. Even when you do learn to live with it – and you will – it’s okay to get angry, especially on bad days. Feelings hit you in waves, and being honest about your anger isn’t a bad thing.

lymeandlove:

lymeandlove:

Thoughts…

It always bothers me when people send their blessings related to my health problems. I know it’s their way of offering support and condolences but it always feels like a cop-out.

Maybe it’s because it’s ALWAYS the people who suddenly ditched me when I started showing symptoms, or didn’t believe me until I got an official diagnosis.

But saying “you’re in my prayers” or “blessings for fast healing” doesn’t make me feel better.

Some things you could say instead:

  • “I hope your pain/symptoms become manageable.”
  • “I hope the pain/symptoms ease soon.”
  • “I know this isn’t easy and I couldn’t begin to understand, but I’m here if you need anything.”
  • “If you need support, all you have to do is ask.”
  • “If you ever want to talk about it, I’m a listening ear.”
  • You could also say: “If you would like me to pray for you or send blessings your way, let me know!” (It takes pressure off of the person you’re trying to support)

spoonsforminutes:

Do you think people who don’t experience chronic pain understand how boring it is to be in pain?

Like yeah, sure, I’ve been in pain for over twenty-four hours, but I’ve run out of movies and Youtube videos to watch, and I could read a book, but the amount of mental energy that takes is just something I don’t have right now. Like imagine not understanding that struggle.